Dante's Inferno with Children: A Travelogue

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August 29, 2006

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Jalon

Daniel sounds EXACTLY like my son Koby!! Koby is now 10 going on 11 and all of the things that you wrote about what he does that drive you nuts and getting kicked out of school and whatnot - that all happened to Koby and us when he was just a little guy. He was diagnosed orignially at 4 with AD/HD and after researching more of his behaviours (ie - googling) I was finding all kinds of things actually clarifying that he actually had Autism - or an Autism Spectrum Disorder. We fought with the school to get another full evaluation with all of the different therapists - like you did - the speech therapist, sensory, occupational, etc. We even brought him to an outside source for testing to get a second opinion - and it confirmed it - our son has Autism. It is High Functioning Autism - otherwise known as Asperger's Syndrome. The reason I am telling you this is because we dealt with a TON of misdiagnoses with our son - and I don't know - it just sounds like you may possibly still be relatively new to the whole process - so maybe I wouldn't rule this out. There are so many other therapy's that they can do to help him if it is Autism and you would be able to get it early. Early intervention is huge. Sensory Integration Disorder is a HUGE, HUGE part of Autism Spectrum Disorders - my son has a ton of different sensory problems he deals with on a daily basis. Hearing, touch, some taste and smells and visual - not to mention vestibular and proprioceptic understanding. So, anyway - I think my email comes through with this - feel free to email me if you would like and I hope I didn't overstep any boundaries in airing my thoughts. I like to try to keep an open mind about things because we have been through hell and back trying to find out what this "thing" was that was afflicting our son and making him miserable and us miserable trying to deal with him. Things are much better now - but it is a work in progress. Best of luck and have a great night!

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